Laing distal myopathy is also described as an MYH7-related skeletal myopathy. You can read a medical overview from the NIH Genetic and Rare Diseases Information Center .
My Disability
I live with Laing distal myopathy, a rare condition that affects my muscles and movement.
What this means for me
I use a walker to help me move around safely. I move more slowly than many people, so getting from one place to another can take me a little longer.
A little patience and extra time can make a real difference.
Important to know
My disability affects my muscles and movement. It does not affect how I think, understand or communicate.
Please speak directly to me and treat me as you would anyone else. If you think I might need assistance, asking first is always appreciated.